42 Years of Care and Ensuring No One Fights Alone!

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

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“Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine. We were no longer alone. They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away. Trust me when I say my NF is much easier with them in my corner. ”
-Myshell
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“..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
-Sue
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“I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
-Jessica
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“{The Walk} was more like a party, than I walk. Enjoyed it so much!” – Kate
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“Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29
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NF Midwest Symposium and iNFo Fair

Learn how to encourage social connections and adaptive behaviors in children with neurofibromatosis.

iNFo Fair 2019: Encouraging Social Connections

Posted By NF Midwest | On October 16th, 2019

We’re so excited to have a family and kid favorite, Sandra Cushner-Weinstein LICSW, returning to speak at our November 9th Symposium and iNFo Fair. Ms. Cushner-Weinstein is a social worker from the Children’s National Medical Center in Washington, DC and the director of Brainy Camps. Brainy Camps offers a series of camps each summer for children with various neurological disorders. Camp New Friends was started in 2004 for children with neurofibromatosis as one the first Brainy Camps.

Brainy Camps strives to help youth with chronic health conditions live well and reach their potential. They accomplish this through their week long condition-specific residential summer camps like Camp New Friends, as well as through year-round support and leadership programs. Their programs provide children with chronic illnesses the opportunities to meet peers, mentors, and counselors with the same conditions and discover that they are not alone in the world.

Ms. Cushner-Weinstein has become an expert on many aspects of raising strong children with chronic conditions and we’ve invited her to our symposium share her knowledge with a presentation entitled ENCOURAGING SOCIAL CONNECTIONS AND ADAPTIVE BEHAVIORS. HOW PARENTS CAN HELP!

LEARN MORE ABOUT the iNFo Fair

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