Neurofibromatosis Midwest

42 Years of Care and Ensuring No One Fights Alone!

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

What We Do
“Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine. We were no longer alone. They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away. Trust me when I say my NF is much easier with them in my corner. ”
-Myshell
Get Involved
“..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
-Sue
Learn
“I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
-Jessica
Events
“{The Walk} was more like a party, than I walk. Enjoyed it so much!” – Kate
News/Blog
“Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29
Support

DIY Fundraising : MavMan Sidekicks

Posted By NF Midwest | On April 28th, 2020

We love to highlight rock star fundraising teams and MavMan Sidekicks did something extraordinary in just 7 days!

Kara, Maverick’s mom, and Dayna, Maverick’s aunt, did a combination of Facebook live videos and social media posts on both Facebook and Instagram to announce/promote their fundraiser. Dayna also made a short video about Maverick’s NF journey. For every $5 donated, donors would receive an entry–They had 130 donors! Maverick got to choose the winners daily.

Doing smaller daily prizes like Dunkin’ gift cards and a Scentsy basket and several donated grand prizes they raised an incredible $3,855.The grand prizes included a $500 Target gift card and a week long registration to Bennett Day Camp!

Way to go MavMan Sidekicks, we are so impressed with your fundraising. So looking forward to seeing you at our Great Steps walk! Check out Maverick’s Team Page here!