Neurofibromatosis Midwest

42 Years of Care and Ensuring No One Fights Alone!

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

What We Do
“Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine. We were no longer alone. They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away. Trust me when I say my NF is much easier with them in my corner. ”
-Myshell
Get Involved
“..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
-Sue
Learn
“I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
-Jessica
Events
“{The Walk} was more like a party, than I walk. Enjoyed it so much!” – Kate
News/Blog
“Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29
Support

Check Out Our New Website!

Posted By NF Midwest | On August 30th, 2012

Check out our new website! We have been working on this for several months after dreaming about it for several years.

Our goal with this site is not just to keep you informed to the happenings at Neurofibromatosis Midwest, but to keep an active, comprehensive neurofibromatosis knowledge base.

It’s a daunting task that requires patience and your help. If you are holding an event for the benefit of neurofibromatosis and NF Midwest or a Network affiliate, please let us know and we will add it to our events. Similarly, if you come across a great article, webinar, or interesting tidbit of information that you feel should be shared with the NF community gather as much of the details as you can and drop us an email.

Please, take time to check out the new site and give us your input. We’d appreciate it if you point out any bugs or confusing links and definitely toss us any great ideas you have.