Miranda- A Face of NF
I was diagnosed at age 2. I have cafe au laits, bilateral optic gliomas, a few cutaneous neurofibromas, innumerable internal…
Read MoreI was diagnosed at age 2. I have cafe au laits, bilateral optic gliomas, a few cutaneous neurofibromas, innumerable internal…
Read MoreIn 2020, NF Midwest awarded $1,000 academic scholarships to six adults affected by neurofibromatosis or schwannomatosis. This is the seventh…
Read MoreIn 2017, I became involved in a clinical research trial through Medical College of Wisconsin for benign cutaneous neurofibromas. Being…
Read MoreSera has a tumor that runs the length of her arm, all the way from her hand up to her…
Read MoreMy name is Evita Ali and I have NF1. I was diagnosed with neurofibromatosis when I was 30 years of…
Read MoreI joined the Army at 19 years old. I did all the training and arrived at my duty station. In…
Read MoreMy sixteen-year-old son began getting café au lait spots at two months old. Our pediatrician at the time gave us…
Read MoreMy STRONG and POSITIVE Sarah was born with NF1. Sarah has had 12 surgeries, 14 chemo sessions, 58 MRI’s, and…
Read MoreWe had moved from a quiet neighborhood to a go, go, go city which meant switching all our providers. When…
Read MoreMy name is Ben. I’m graduating high school next week and heading to college this fall. Neurofibromatosis type 1 was…
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