Letters Needed for New Code for Mass Removal of NF Tumors
We have an URGENT request of anyone who is affected by multiple tumors from neurofibromatosis or has a loved one…
Read MoreWe have an URGENT request of anyone who is affected by multiple tumors from neurofibromatosis or has a loved one…
Read MoreThe Genetics Division at the Faculty of Medicine and Health Sciences from Université de Sherbrooke in Québec has opened a…
Read MoreGenetic Evaluation for the Scoliosis Gene(s) in Patients with Neurofibromatosis 1 and Scoliosis Participants are needed for a study entitled:…
Read MoreCall for Study Participants The Department of Medical Genetics at Henry Ford Hospital in Detroit, MI is conducting a study…
Read MoreA neurofibromatosis type 2 researcher is looking for people who have been diagnosed with NF2 and have hearing loss to…
Read MoreNF Midwest Symposium Attendees Give Blood for Research. Those who attended Neurofibromatosis Midwest’s Symposium on Oct. 13th had a rare…
Read MoreA consortium of medical institutions is collecting limited information on schwannomatosis patients. This includes their symptoms, their management and medication,…
Read MoreIf you or your child has been diagnosed with neurofibromatosis (NF) please join the NF Registry today. The key to…
Read MoreIndiana University is conducting a NF1 quality of life study. This study will help us to better understand how NF1…
Read MoreThe Washington University Neurofibromatosis (NF) Center has launched a unique internet-based NF1 Registry, which is a 30-minute questionnaire. This questionnaire…
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