42 Years of Care and Ensuring No One Fights Alone!

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Survey of Neurofibroma Removal

We are conducting an important survey of patients with NF1 about electrosurgical removal of neurofibromas (dermal (cutaneous)) and/or subcutaneous tumors…

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NF1 and Scoliosis Genetic Study

Genetic Evaluation for the Scoliosis Gene(s) in Patients with Neurofibromatosis 1 and Scoliosis Participants are needed for  a study entitled:…

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NF1 and Breast Cancer Study

Call for Study Participants The Department of Medical Genetics at Henry Ford Hospital in Detroit, MI is conducting a study…

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Special Neurofibromatosis Blood Draw

NF Midwest Symposium Attendees Give Blood for Research. Those who attended Neurofibromatosis Midwest’s Symposium on Oct. 13th had a rare…

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Schwannomatosis International Database

A consortium of medical institutions is collecting limited information on schwannomatosis patients. This includes their symptoms, their management and medication,…

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NF Registry

If you or your child has been diagnosed with neurofibromatosis (NF) please join the NF Registry today. The key to…

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