Using Mindfulness for Pain in Neurofibromatosis (ACT Study for Pain)
Life can feel a bit like a juggling act some days. Too often, we find ourselves trying so hard to…
Read MoreLife can feel a bit like a juggling act some days. Too often, we find ourselves trying so hard to…
Read MoreTHIS STUDY IS NOW FULL! Researchers at the Indiana University are currently seeking both parents and children with Neurofibromatosis Type…
Read MoreWho are the people most important to you? What things matter most to you? How do you want to be…
Read MoreHelp researchers know what people with NF1- associated Plexiform Neurofibromas need! If you or your child has NF1 and a…
Read MoreResearchers at Indiana University are creating a survey on how having NF1 affects people’s health and well-being. This tool will become…
Read MoreNF Midwest has partnered with CTF to promote the NF Registry The NF Registry is a database where anyone who…
Read MoreCoping with Pain: an ACTive Approach Do you have NF1 and one or more plexiform neurofibromas? Do you have…
Read MoreThe Department of Genetics at Stevenson University is conducting a survey on the psychological effects of “looking different” which was…
Read MoreBonnie Klein-Tasman, Ph.D and her team at the University of Wisconsin-Milwaukee are looking for children ages 9 to 13 with…
Read MoreDr. Maria Acosta at Children’s National Medical Center is looking for parents of children with Neurofibromatosis Type 1 in which…
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