42 Years of Care and Ensuring No One Fights Alone!

Participate in Research

Tumor Early Detection (TED) Study

The NF1-TED study is still recruiting and is looking for 1000 participants, age 18 and older. This study looks to…

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My NF Study Guide

If you or your child has NF1 and have not visited an NF Clinic Network (NFCN) clinic in the past…

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Resilient Youth With NF Study

Researchers at Massachusetts General Hospital are investigating a new stress and symptom management program for adolescents (ages 12-17) with NF1,…

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Adolescents Resiliency with NF Study

The Family Center for Neurofibromatosis and the Integrated Brain Health Clinical and Research Program (IBHCRP) at the Massachusetts General Hospital…

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