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Research

Neurofibromatosis Network Edge Volume 2

Check out the newest edition of the Network Edge provided by the Neurofibromatosis Network, NF Midwest’s national affiliate. This science column provides…

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Neurofibromatosis Network Science Column

The Neurofibromatosis Network, NF Midwest’s national affiliate, has just unveiled their new science column called The Network Edge which will provide a…

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Special Neurofibromatosis Blood Draw

NF Midwest Symposium Attendees Give Blood for Research. Those who attended Neurofibromatosis Midwest’s Symposium on Oct. 13th had a rare…

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Schwannomatosis International Database

A consortium of medical institutions is collecting limited information on schwannomatosis patients. This includes their symptoms, their management and medication,…

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NF Registry

If you or your child has been diagnosed with neurofibromatosis (NF) please join the NF Registry today. The key to…

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NF1 Washington University Registry

The Washington University Neurofibromatosis (NF) Center has launched a unique internet-based NF1 Registry, which is a 30-minute questionnaire. This questionnaire…

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