Research Support Grant Given to the University of Chicago
We’re very excited to announce that we have awarded the Martin Ginsberg grant to support neurofibromatosis research at the University…
Read MoreWe’re very excited to announce that we have awarded the Martin Ginsberg grant to support neurofibromatosis research at the University…
Read MoreHelp researchers know what people with NF1- associated Plexiform Neurofibromas need! If you or your child has NF1 and a…
Read MoreLast week representatives of NF Midwest, along with members of other NF organizations, stormed Capitol Hill in Washington DC asking for support…
Read MoreResearchers at Indiana University are creating a survey on how having NF1 affects people’s health and well-being. This tool will become…
Read MoreOn February 8th and 9th, NF Midwest executive director Diana Haberkamp and others will be the visiting congressional offices of…
Read MoreBig NF news out of Washington, D.C. today! Thanks to your dedicated and passionate outreach – your letters and emails,…
Read MoreThursday and Friday, December 3rd and 4th, were just amazing days for me, NF Midwest and the entire NF Community….
Read MoreNF Midwest has partnered with CTF to promote the NF Registry The NF Registry is a database where anyone who…
Read MoreThe House of Representatives is in budget negotiations and we need people to contact their Congressman NOW and ask them to…
Read MoreCoping with Pain: an ACTive Approach Do you have NF1 and one or more plexiform neurofibromas? Do you have…
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