$15 Million for NF Research Thanks to Grassroots Efforts and the NF Midwest Community
The efforts of our community, our donors, and the advocacy of NF Midwest (and other NF organizations) all worked together…
Read MoreThe efforts of our community, our donors, and the advocacy of NF Midwest (and other NF organizations) all worked together…
Read MoreThe Education and Brain Sciences Research lab at Vanderbilt University is seeking participants for a new research study! The purpose…
Read MoreNF Midwest, in collaboration with NF Northeast, has awarded Dr. Vijaya Ramesh from Massachusetts General Hospital, a grant for research in neurofibromatosis…
Read MoreIn February AstraZeneca and Merck announced that the U.S. Food and Drug Administration (FDA) granted Orphan Drug Designation (ODD) for…
Read MoreEvery year NF Midwest staff and volunteers travel to Washington, DC to advocate for research dollars for neurofibromatosis and schwannomatosis through the…
Read MoreAttention, parents of children (ages 4-6) with neurofibromatosis Type 1, help researchers learn more about your child’s attention abilities! Purpose…
Read MoreAre you feeling stressed? Are your NF symptoms bothersome? The Family Center for Neurofibromatosis and the Integrated Brain Health Clinical…
Read MoreIn February, NF Midwest staff and volunteers will descend on Washington DC along with other NF organizations to ask our…
Read MoreFrank Buono, PhD, one of our NF Midwest community members and recent speaker at NF Midwest’s November symposium, has been…
Read MoreDr. Frank Buono with Yale University School of Medicine, in the Department in Psychiatry is looking for volunteers interested in…
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