Another $15 Million for Neurofibromatosis
Great News! The signing of the FY20 Defense Appropriations Act by the President today included $15 million in federal funding for the…
Read MoreGreat News! The signing of the FY20 Defense Appropriations Act by the President today included $15 million in federal funding for the…
Read MoreThe Medical College of Wisconsin is looking for people with neurofibromatosis type 1 ages 14 to 30 to participate in…
Read MoreCaregivers of children with NF1: Please, help us continue to make strides by participating in research! With funding from NF…
Read MoreBig news just hit…though it has been expected! Many of us have been following the success of the drug selumetinib…
Read MoreFrank Buono PhD, from the Department of Psychiatry at Yale School of Medicine and longtime member and supporter of NF…
Read MoreMassachusetts General Hospital is looking for adults with NF1, NF2, or Schwannomatosis to participate in a research study to enhance…
Read MoreIn February, NF Midwest staff and volunteers will once descend on Washington DC along with other NF organizations to ask…
Read MoreIf you’ve been paying any attention to NF research in the last several years you’ll have noticed that in clinical…
Read MoreThis past February, NF Midwest brought volunteers to Washington DC to once again advocate for federal dollars for neurofibromatosis type…
Read MoreAre you the parent/caregiver of a child with neurofibromatosis type 1 (NF1) between the ages of 3-18 years? The MIND…
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