NF1 Plexiform Interview (RTI Health)
RTI-Health Solutions (RTI-HS) is inviting individuals, aged 18 years and older, who have been diagnosed with NF1-PN to participate in…
Read MoreRTI-Health Solutions (RTI-HS) is inviting individuals, aged 18 years and older, who have been diagnosed with NF1-PN to participate in…
Read MoreThe NF1-TED study is still recruiting and is looking for 1000 participants, age 18 and older. This study looks to…
Read MoreIf you or your child has NF1 and have not visited an NF Clinic Network (NFCN) clinic in the past…
Read MorePress Release FDA Grants Priority Review to SpringWorks Therapeutics’ New Drug Applicationfor Mirdametinib for the Treatment of Adults and Children…
Read MoreThere’s some exciting news for those with NF2-related schwannomatosis (NF2-SWN) that might bring hope to treatment options! A recent study…
Read MoreFebruary 6th and 7th, NF Midwest staff and volunteers will be meeting with our the offices of our Senators and…
Read MoreAn article by Sharon Reynolds from the National Cancer Institue highlights the importance of people with neurofibromatosis type 1(NF1) to…
Read MoreResearchers at Massachusetts General Hospital are investigating a new stress and symptom management program for adolescents (ages 12-17) with NF1,…
Read MoreResearchers are looking for at least 1,000 people over the age of 40 with NF1 to participate in an exciting…
Read MoreIf you struggle with pain from NF1, you are invited to participate in a clinical trial to evaluate a chronic…
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