Spotlight on Hosting a DIY Event: E’s Hulksters
The captain of E’s Hulksters, Dawni Henry, shares with NF Midwest what hosting a DIY (Do It Your Way) event…
Read MoreThe captain of E’s Hulksters, Dawni Henry, shares with NF Midwest what hosting a DIY (Do It Your Way) event…
Read MoreBetween 25-30 million Americans are living with a rare disease according to the National Organization for Rare Disease (NORD). A…
Read MoreJanuary 2020 started the beginning of the Public Health Emergency (PHE) as a response to the increased need for health…
Read MoreJoin us in supporting neurofibromatosis (NF) by participating in one of our Walk4NF events or by volunteering your time and…
Read MoreWith a few key words and the push of the enter key you can search pretty much any topic you…
Read MoreStarted in 2004, Camp New Friends is a condition-specific camp for children with neurofibromatosis ages 7-17 located on the beautiful…
Read MoreJohn Hopkins Medicine Center is currently conducting a study on those with neurofibromatosis type one (NF1) and cutaneous neurofibromas also…
Read MoreIf you’re a post high school student with neurofibromatosis or schwannomatosis, and you live in NF Midwest’s service region of Illinois,…
Read MoreInsurance issues are a huge headache no one wants. Many are in the habit of tossing out their insurance benefit…
Read More$25 million has been allocated specifically for the Neurofibromatosis Research Program (NFRP) in the Fiscal Year 2023 Omnibus appropriates bill…
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