Great News! $25 Million Secured for Neurofibromatosis Research in FY 2024
There’s fantastic news for the fight against neurofibromatosis (NF) and schwannomatosis (SWN)! The recent spending bill allocates $25 million specifically…
Read MoreThere’s fantastic news for the fight against neurofibromatosis (NF) and schwannomatosis (SWN)! The recent spending bill allocates $25 million specifically…
Read MoreFebruary 29th is Rare Disease Day. In the United States alone, according to the National Organization for Rare Diseases (NORD),…
Read MoreLegends of the NF Cause: How Do We Honor Gordon Cummings and Gert Ginsberg? Losing Gordon and Gert In the…
Read MoreHave you ever noticed faint, light brown patches on your skin? These “café au lait” spots are quite common, but…
Read MoreThank You to Our “Boots on the Hill” We extend our heartfelt gratitude to Laura Haslam, Christina, Kassandra Thomas, Adam,…
Read MoreHere is your sign to start the new year working on your goal of continuing post high school education. The…
Read MoreDuring the week of February 4-6th NF Midwest along with other NF organizations, advocates, caregivers and those with neurofibromatosis (NF)…
Read MoreNF Midwest recognizes the unique challenges that accompany living with neurofibromatosis (NF), impacting both individuals with the condition and their…
Read MoreNF Midwest extends heartfelt gratitude to the Frano Family for their remarkable generosity and creativity. Inspired by their commitment, the…
Read MoreNational Philanthropy Day is a cherished occasion that shines a spotlight on individuals who dedicate their resources, time, and unique…
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