Natural History Study of Cutaneous Neurofibromas in People with NF1
John Hopkins Medicine Center is currently conducting a study on those with neurofibromatosis type one (NF1) and cutaneous neurofibromas also…
Read MoreJohn Hopkins Medicine Center is currently conducting a study on those with neurofibromatosis type one (NF1) and cutaneous neurofibromas also…
Read MoreIf you’re a post high school student with neurofibromatosis or schwannomatosis, and you live in NF Midwest’s service region of Illinois,…
Read MoreInsurance issues are a huge headache no one wants. Many are in the habit of tossing out their insurance benefit…
Read MoreOptic Pathway Gliomas are often referred to as OPG and may affect those with neurofibromatosis type1 (NF1). In most cases…
Read MoreOver 200 agencies and organizations such as The United Way, Community Action, and Goodwill just to name a few have…
Read MoreIf you’re a post high school student with neurofibromatosis or schwannomatosis, and you live in NF Midwest’s service region of Illinois,…
Read MoreMany individuals with NF have concerns about whether their NF diagnosis places them at additional risk of side effects from…
Read MoreAn update of the diagnostic criteria for neurofibromatosis type 1 has just been published in Genetics in Medicine, the official…
Read MoreThe Covid-19 pandemic has clearly had a tremendous impact on us all. Perhaps the most affected area, aside from medical…
Read MoreNF Midwest is proud to announce an upcoming webinar and resource produced by The NF Collective about transitioning to adult…
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