Volumetric Measurement of Tumors in Neurofibromatosis
At NF Midwest’s annual symposium in October 2014 we invited Eva Dombi, MD, from the National Cancer Institute to present…
Read MoreAt NF Midwest’s annual symposium in October 2014 we invited Eva Dombi, MD, from the National Cancer Institute to present…
Read MoreAt our annual symposium on October 25, 2014 Dr. Parag Shah of Lurie Children’s Hospital and LaRabida Children’s Hospital spoke on…
Read MoreWritten for NF Midwest by Heather Radtke, MS, CGC Neurofibromatosis type 1 (NF1) is a genetic condition caused by mutations…
Read MoreThe Neurofibromatosis Network presented this webinar on social emotional development in neurofibromatosis in September of 2014. The speaker was Sandy…
Read MoreThe Neurofibromatosis Network presented this webinar on seizures in neurofibromatosis type 1 in May of 2014. The speaker was Dr….
Read MoreNeurofibromatosis is a chronic, life-long disorder and unfortunately we find that adults with NF often neglect their own care. Sometimes…
Read MoreAt our annual NF Symposium we always include a topic called “Introduction to Neurofibromatosis” or “NF 101” and have…
Read MoreREGISTER/FIND OUT MORE DONATE TO NF EDUCATION Dr. Tonsgard and attendees at the 2013 Symposium. Learning disabilities are a lifelong…
Read MoreHave you been wondering about the AR-42 study that NF Midwest funded two years ago? Come to the Neurofibromatosis Type 2…
Read MoreVolumetric Assessment of NF Related Tumors?? Say what? Hopefully we don’t hear a round of yawns, because this is actually…
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