
be iNFormed – Gene Deletion in Neurofibromatosis-1
Written for NF Midwest by Heather Radtke, MS, CGC Neurofibromatosis type 1 (NF1) is a genetic condition caused by mutations…
Read MoreWritten for NF Midwest by Heather Radtke, MS, CGC Neurofibromatosis type 1 (NF1) is a genetic condition caused by mutations…
Read MoreOne of the presentations at NF Midwest’s annual family symposium held on October 12, 2013, was by Amanda Bergner from…
Read MoreAt NF Midwest’s annual family symposium held on October 12, 2013, Dr. Joseph Kissil from the Scripps Institute in Florida…
Read MoreWe have a new be iNFormed article that was written for us by Ram Meyyappan from Social Security Disability Help. This…
Read MorePain in NF1 One of most common challenges for individuals with NF1 is living with chronic pain. By definition, chronic…
Read MoreWhat should you know? People with neurofibromatosis type 1 (NF1) can have many medical problems related to tumors, bone disease…
Read MoreIt can be difficult for general care physicians and even specialists to stay informed about every disorder they may encounter….
Read MoreThis one covers Comprehensive Neuropsychological Evaluations for Children with NF1. Thank you to Jill Isenberg, Ph.D., ABPP from the St. Louis…
Read MoreUse the NF1 Information for Teachers (NF Midwest be iNFormed Series) article to provide to your child’s teacher and school. This article is…
Read MoreBy Amanda Bergner, MS, CGC (NF Midwest be iNFormed Series) People who themselves have been diagnosed with NF1, NF2 and…
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