
Updated NF1 Information for Medical Professionals
It can be difficult for general care physicians and even specialists to stay informed about every disorder they may encounter….
Read MoreIt can be difficult for general care physicians and even specialists to stay informed about every disorder they may encounter….
Read MoreWe have a new be iNFormed article for our NF Midwest community. be iNFormed articles are written on various subjects of interest…
Read MoreThe following is a blog by Dr. Luiz Rodrigues. Originally posted in Portuguese on January 13, 2017. Additions and translation…
Read MoreNF Midwest is excited to add a new piece to our be iNFormed series. This is a series of material…
Read MoreThanks to the work of the BC Neurofibromatosis Foundation and Genefo we now have a great guide for parents about…
Read MoreIf you have cutaneous neurofibromas that are causing you any distress you CAN have them removed. They are ALMOST always…
Read MoreSchool is starting! If you have a child with neurofibromatosis type 1 you might find our be iNFormed article NF1 Information for Teachers helpful….
Read MoreWhat Should You Know? PDF Version Seizures occur in people with Neurofibromatosis type 1 more commonly than people who don’t…
Read MoreAt our annual symposium on October 25, 2014 Long-Sheng Chang, Phd from The Research Institute at Nationwide Children’s Hospital and…
Read MoreAt our annual symposium on October 25, 2014 Dr. Parag Shah of Lurie Children’s Hospital and LaRabida Children’s Hospital spoke on…
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