Neurofibromatosis Midwest

42 Years of Care and Ensuring No One Fights Alone!

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

What We Do
“Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine. We were no longer alone. They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away. Trust me when I say my NF is much easier with them in my corner. ”
-Myshell
Get Involved
“..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
-Sue
Learn
“I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
-Jessica
Events
“{The Walk} was more like a party, than I walk. Enjoyed it so much!” – Kate
News/Blog
“Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29
Support

Can You Hear Us – New NF2 Initiative

Posted By NF Midwest | On July 1st, 2013

Forty-four extraordinary individuals from around the world have united to share their journeys with Neurofibromatosis Type 2 (NF2). NF2: Our Journeys is a collection if inspirational life stories written by people with NF2 and produced by Can You Hear Us?.

This is the first project for Can You Hear Us?, a new self-help, support, and social advocacy group for people with Neurofibromatosis Type 2 (NF2) that has formed in the UK. The group has been created as a way of giving a voice to people with NF2 and to encourage each other to take advantage of adversity. They seek to prove “that it is possible to live a happy and fulfilled life whilst battling with a degenerative condition that currently has no cure through the uniting and presenting of people who refuse to be defined by the disease.”