42 Years of Care and Ensuring No One Fights Alone!

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

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“Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine. We were no longer alone. They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away. Trust me when I say my NF is much easier with them in my corner. ”
-Myshell
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“..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
-Sue
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“I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
-Jessica
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“{The Walk} was more like a party, than I walk. Enjoyed it so much!” – Kate
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“Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29
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Camp New Friends

July 10-14 – Virtual, In-Person, and Hybrid Options

Camp New Friends

Posted By Paul J LeBlanc, RN, BS, CCM | On May 17th, 2021

Camp New Friends, run by Brainy Camps from the Children’s National Medical center has redesigned its programming this summer to creatively mitigate COVID risk and ensure safe participation in their various camps. For 2021, there will be four different options for participation available depending on whether a child is vaccinated or not. The Camp New Friends programming will run from June 26-June 30 (depending on the program) and July 12-14 for virtual only. NF Midwest will once again provide funding to Brainy Camps to assist campers from our region but you must apply through Brainy Camps. Please contact us if you’d like more information.

We’ve summarized the options here, however, you can learn MUCH more and verify information as it may be changing at www.brainycamps.com.

Program	Length	Date	Vaccine Req.	CamperCost	CITCost
Weekend Getaway	2 days	June 26-27	No	$300
5-Day Residential	5 Days	June 26-30	Yes	$850	$650
Hybrid Weekend/3 Day Virtual	5 Days	June 26-27	No	$550	$450
Virtual Only	3 Days	July 12 –14	No	$250

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