Neurofibromatosis Midwest

42 Years of Care and Ensuring No One Fights Alone!

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

What We Do
“Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine. We were no longer alone. They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away. Trust me when I say my NF is much easier with them in my corner. ”
-Myshell
Get Involved
“..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
-Sue
Learn
“I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
-Jessica
Events
“{The Walk} was more like a party, than I walk. Enjoyed it so much!” – Kate
News/Blog
“Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29
Support

be iNFormed about Learning in NF1

Posted By NF Midwest | On September 11th, 2012

James Tonsgard MD and Scott Hunter PhD (NF Midwest be iNFormed Series)

Neurofibromatosis Midwest is excited to start a new education initiative called be iNFormed. As part of this initiative we will be working with neurofibromatosis experts and our sister NF organizations throughout the world to create simple articles about specific complications or areas of interest with regards to neurofibromatosis.

The first article in our series is titled Learning Problems in Neurofibromatosis-1, written by James Tonsgard MD, neurologist and Scott Hunter PhD, neuropsychologist, from the University of Chicago NF Clinic. This article covers the types of issues a person with neurofibromatosis type 1 might have with learning and also some of the evaluations and school interventions.

Check out the article here and be sure to check out other learning related resources for neurofibromatosis type 1.