43 Years of Care and Ensuring No One Fights Alone!

Articles by Diana Haberkamp

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Evita – A Face of NF

My name is Evita Ali and I have NF1. I was diagnosed with neurofibromatosis when I was 30 years of…

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Taylor – A Face of NF

I have been running competitively for almost 2 years and love it. It helps me relax, great stress reliever gave…

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Rick – A Face of NF

My name is Rick. I wasn’t diagnosed with NF Type 1 until I was 32 years old. I had no…

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Tim – A Face of NF

I am 64 years old with no prior neurofibromatosis  family history and none of my 6 siblings have NF, making…

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Ana – A Face of NF

Ana is 10 years old. She was diagnosed with neurofibromatosis type 2 when she was seven. Her genetic disorder was…

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Rory – A Face of NF

Aurorah (Rory), now age 9, was diagnosed with neurofibromatosis type 1 shortly after her sixth birthday.  She was born with…

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Young Adult Leadership Program

Because the neurofibromatosis cause needs New Fighters and young iNFluencers! See photos This January I had the extreme privilege of…

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