25th Symposium and (new) iNFo Fair
Our 25th Annual Neurofibromatosis Symposium is scheduled for Saturday, October 24th and new this year, it will include an iNFo Fair!
The NF Symposium and iNFo Fair will feature short presentations on various subjects designed to inform and
help improve the lives of those with neurofibromatosis. There will also be tables with extra information manned by experts to give you a chance to ask more questions and to socialize and share with others.
- Special Guest Rick Giudotti of Positive Exposure – Rick is an award winning fashion photographer who now uses his talents in photography and video to transform public perceptions of people living with genetic, physical and behavioral differences. In 2007, Rick spoke at our symposium and also took the beautiful photos of children and adults with NF that we often use today for education and awareness. Rick will once again be taking photos. If you attend you will have an opportunity to have beautiful photos taken of you and your loved ones. You may opt out of allowing NF Midwest to use them, but they will still be made available for your private use.
- Annette Bakker, President and Chief Scientific Officer at the Children’s Tumor Foundation (CTF) will be presenting on the promise of research and how to participate. CTF will also be providing extra material on research initiatives and updates.
- Introduction to Neurofibromatosis
- SSI/SSDI, Insurance, and Disability from the Legal Council of Chicago
- Learning disabilities, IEP, 504
- Physical therapy, OT, speech
- Lobbying and advocacy
- Fibroma removal update/news
- NF2 Research update
- ….AND MORE TO BE ANNOUNCED!
It is important to reserve your spot now!
This is an affordable event provided by NF Midwest at a hugely reduced price of $25 per person and includes a continental breakfast, lunch buffet and afternoon snack.
Symposium Kids Group 2013
Supervised kids groups are available for children five and up. Also, we have a block of rooms reserved at a local hotel that includes shuttle service to the venue.
The symposium is open to the entire NF community regardless of the region. NF Midwest does have financial assistance for those who have a proven need from our region which includes Illinois, Wisconsin, Indiana, Kentucky, Iowa and the east half of Missouri.
Lunch
If you need assistance and aren’t from our region, you will have to contact your local NF organization or a national organization to see if they can provide assistance.
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