Neurofibromatosis Midwest

42 Years of Care and Ensuring No One Fights Alone!

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

What We Do
“Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine. We were no longer alone. They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away. Trust me when I say my NF is much easier with them in my corner. ”
-Myshell
Get Involved
“..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
-Sue
Learn
“I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
-Jessica
Events
“{The Walk} was more like a party, than I walk. Enjoyed it so much!” – Kate
News/Blog
“Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29
Support

211 Call Line to Find Resources

Posted By Sarah Selogic | On December 13th, 2022

Over 200 agencies and organizations such as The United Way, Community Action, and Goodwill just to name a few have banded together to create what they call 211. 211 is a non-emergency service that is available 24/7 and links its users to a referral specialist in their location. All a user has to do is dial 211 on their phone to be connected to a referral specialist who will help to locate agencies that can assist them with housing, food, and many other social services. There are currently over 200 locations across the US that offer the 211 service and they have plans to continue to expand their services to reach as many as possible. If you need any services, you can give 211 a try or feel free to reach out to the Care and Outreach Coordinator who will gladly assist with locating resources in your area.

211 National Website