Socialization Issues in NF1 - Neurofibromatosis Midwest

42 Years of Care and Ensuring No One Fights Alone!

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

What We Do
“Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine. We were no longer alone. They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away. Trust me when I say my NF is much easier with them in my corner. ”
-Myshell
Get Involved
“..we reminded ourselves to not get overwhelmed by the info and just to take it all in stride as much as we can. I think when it’s all new to you, it all sounds so scary. Which is why it was so nice to meet other families with happy kids and adults with NF. ”
-Sue
Learn
“I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
-Jessica
Events
“{The Walk} was more like a party, than I walk. Enjoyed it so much!” – Kate
News/Blog
“Thanks for giving me information to guide me in the right direction. I can do this because you have given me the tools to get started. Other websites send me in circles leaving me with more questions than I began with. So once again THANK YOU FOR CARING.” – S.E. Age 29
Support

Socialization Issues in NF1

NF Midwest Symposium | 2013
By Dr. Scott Hunter, University of Chicago

Frequently some children and adults with neurofibromatosis type 1 have problems with socialization and making friends. At NF Midwest’s annual symposium on October 12, 2013 we invited Dr. Scott Hunter from the University of Chicago to address this issue and he gave us a wonderful presentation on Socialization in NF1: Why they occur and what to do to improve them. In case you missed our symposium, Dr. Hunter has allowed us to post his slides. We also hope to have an article in the near future.

GET PDF OF SLIDES

Another great resource for sharing and learning from others regarding socialization and any other concerns is the NF Network’s Inspire Board.

Currently there are even several discussions regarding socialization and NF on the Inspire Board.

http://www.inspire.com/groups/neurofibromatosis-network/discussion/socialization-issues-with-kids/

http://www.inspire.com/groups/neurofibromatosis-network/discussion/does-your-child-with-nf1-find-it-hard-to-make-friends/

<< Search Our Articles

Great Non Profits Badge

GuideStar Exchange

Donate

© 2024 Neurofibromatosis Midwest - non profit 501(c)(t3). Site Map - Privacy Policy
The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.