Information for Medical Professionals

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Neurofibromatosis Midwest

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“I received both of your packets in the mail yesterday and I wanted to say THANK YOU! The NF packet provided me with so much information I cannot thank you enough. When we got his diagnosis in November we had never even heard of NF so this has all been a bit of a whirlwind for us. Thank you for providing me with the tools to pass along to his teacher and my family! ”
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Information for Medical Professionals

NF Midwest

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It can be difficult for general care physicians and even specialists to stay informed about every disorder they may encounter. This includes the neurofibromatoses. To help, we NF Midwest created a special sheet called NF1 Information for Medical Professionals.

This informative sheet is designed to provide basic facts about neurofibromatosis type 1 and complications that may occur to help guide medical professionals. Anyone is welcome to print it out to bring to their doctor. It is also included in packets to new families from our region and will be available at our events and through our chapters.

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The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.

Neurofibromatosis Midwest

Clinics, Awareness, Research, Education & Support

Information for Medical Professionals

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