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The Faces of Neurofibromatosis

See them, hear them, care about them!

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Improving the Lives of People with Neurofibromatosis

Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.

Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.


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The Loss of an NF Legend: Dr. Vincent Riccardi

We are deeply saddened by the passing of Dr. Vincent “Vic” Riccardi, a pioneering expert in neurofibromatosis (NF) research and…

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Legends of the Cause: Gordon and Gert

Legends of the NF Cause: How Do We Honor Gordon Cummings and Gert Ginsberg? Losing Gordon and Gert In the…

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New Support Groups Re-Launching in February

NF Midwest recognizes the unique challenges that accompany living with neurofibromatosis (NF), impacting both individuals with the condition and their…

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Unleash Your Impact: DIY Fundraising Spotlight

NF Midwest extends heartfelt gratitude to the Frano Family for their remarkable generosity and creativity. Inspired by their commitment, the…

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NF MIDWEST C.A.R.E.S. to improve the lives of people with NF

Over

100,000

Americans

suffer from Neurofibromatosis

We support

6 states

13 clinics

1.5 million

In Research & Care


Stay Informed with NF Midwest See All NF Posts

The Loss of an NF Legend: Dr. Vincent Riccardi

We are deeply saddened by the passing of Dr. Vincent “Vic” Riccardi, a pioneering expert in neurofibromatosis (NF) research and…

2024 Scholarship Recipients

The NF Midwest Scholarship Program is proud to add another year of empowering students with neurofibromatosis (NF) to achieve their…

THANK YOU! YOU ARE ON FIRE!🔥

We are absolutely thrilled to share some amazing news: thanks to your incredible generosity, you’ve raised an outstanding $144,024 for…

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