Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.
Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.
NF Midwest advocates will be in Washington, D.C., February 22–24 to urge Senators and Representatives to continue supporting research for…
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NF Midwest Scholarship Applications are now open! This is your sign to kick off the new year by pursuing your…
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Because of Her, It Started. Because of You, It Continues. Dear Friend of NF Midwest, My journey started in 1976…
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NF Midwest is excited to share important news for our community, news that brings real hope to people living with…
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Researchers supported by NTAP have announced an exciting breakthrough in gene therapy for NF1. For the first time, scientists have…
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NF Midwest advocates will be in Washington, D.C., February 22–24 to urge Senators and Representatives to continue supporting research for…
NF Midwest Scholarship Applications are now open! This is your sign to kick off the new year by pursuing your…
Because of Her, It Started. Because of You, It Continues. Dear Friend of NF Midwest, My journey started in 1976…
The Response Evaluation in Neurofibromatosis and Schwannomatosis (REiNS) Collaborative is an international effort to develop new standardized response criteria for determining treatment response in patients with NF1,…
NF Midwest is excited to share important news for our community, news that brings real hope to people living with…
Researchers supported by NTAP have announced an exciting breakthrough in gene therapy for NF1. For the first time, scientists have…
When my son, Benjamin, came home from Camp NF this summer, he couldn’t stop talking about everything he had learned…
Did you know that November is National Epilepsy Awareness Month? According to the Epilepsy Foundation, individuals with NF1 are at…
Our 2025 iNFo Fair brought our NF community together with a powerful theme: Be Proactive, Be Informed, Be Heard. The…
Are you and your HCP often in agreement with your treatment plan for neurofibromatosis type 1 (NF1) or neurofibromatosis type…
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The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.
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