Dedicate Your Donation. Share and Receive Extra Entries.
Drawing is on November 26th. Donations accepted until 6 pm CST.
Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.
Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.
When my son, Benjamin, came home from Camp NF this summer, he couldn’t stop talking about everything he had learned…
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Did you know that November is National Epilepsy Awareness Month? According to the Epilepsy Foundation, individuals with NF1 are at…
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Are you and your HCP often in agreement with your treatment plan for neurofibromatosis type 1 (NF1) or neurofibromatosis type…
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If you or someone you love has neurofibromatosis type 1 (NF1), it’s important to know that women with NF1 between…
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Help Improve NF1 Care!Even Your Own Right Now!Participants Needed! I’m lucky to be able to go to an NF clinic,…
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When my son, Benjamin, came home from Camp NF this summer, he couldn’t stop talking about everything he had learned…
Did you know that November is National Epilepsy Awareness Month? According to the Epilepsy Foundation, individuals with NF1 are at…
Our 2025 iNFo Fair brought our NF community together with a powerful theme: Be Proactive, Be Informed, Be Heard. The…
Are you and your HCP often in agreement with your treatment plan for neurofibromatosis type 1 (NF1) or neurofibromatosis type…
They gave 10 AMAZING YEARS to the cause and raised a lot of funds. Thank you to the Oswald family…
If you or someone you love has neurofibromatosis type 1 (NF1), it’s important to know that women with NF1 between…
September is Pain Awareness Month!Chronic pain affects millions—including people living with NF and SWN. Tumors, bone complications, migraines, and other…
SpringWorks Sponsorship Brings Hope and Support to the NF Community We are excited to share some wonderful news — SpringWorks Therapeutics is…
Back-to-school season brings new routines, new teachers, and sometimes new challenges for families living with neurofibromatosis (NF). That’s why we’re…
September is National Hydrocephalus Awareness Month, a time to be iNFormed about this condition that affects people of all ages….
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The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.
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