Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.
Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.
NF Midwest recently concluded its 2024 Champions of the Fall fundraising campaign, a dedicated effort to support individuals affected by…
Neurofibromatosis Midwest (NF Midwest) is excited to announce the 2025 Walk4NF events, dedicated to raising awareness and funds for individuals…
The NF1-TED study is still recruiting and is looking for 1000 participants, age 18 and older. This study looks to…
Check out NF Midwest’s December update. If you are connected with us, you should have received this in an email!…
If you or your child has NF1 and have not visited an NF Clinic Network (NFCN) clinic in the past…
Welcome to Champions of the Fall! This is an exciting new fundraising and awareness campaign from NF Midwest, running from October…
Win Up To $500 in Visa Gift Cards! Get ready for Black Friday, Cyber Monday, Giving Tuesday—and the whole season…
Each year NF Midwest provides the opportunity for families to apply for scholarships for their son or daughter to attend…
Press Release FDA Grants Priority Review to SpringWorks Therapeutics’ New Drug Applicationfor Mirdametinib for the Treatment of Adults and Children…
NeurologyLive recently posted a video series Managing Neurofibromatosis Type 1 Related Plexiform Neurofibroma in Patients of Different Ages. The series…
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The resources on this site should not be used as a substitute for professional medical care or advice on Neurofibromatosis. Users seeking information about a personal genetic disease, syndrome, or condition should consult with a qualified healthcare professional.
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