42 Years of Care and Ensuring No One Fights Alone!

NF Midwest has a new fall fundraising and awareness campaign kicking off on October 1st called Champions of the Fall (COTF).

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NO ONE FIGHTS ALONE!

Join NF Midwest so that no one fights alone! GIVE the gift of CARE.

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The Faces of Neurofibromatosis

See them, hear them, care about them!

Read Their Stories

Improving the Lives of People with Neurofibromatosis

Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982, and we are determined to continue our work to educate, comfort, improve clinical care and fund research for treatments and a cure. We are staffed by people with a personal interest in NF, with real experience and a determination and motivation to use precious funds in an efficient manner.

Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.


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Tumor Early Detection (TED) Study

The NF1-TED study is still recruiting and is looking for 1000 participants, age 18 and older. This study looks to…

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NF Midwest December Update

Check out NF Midwest’s December update. If you are connected with us, you should have received this in an email!…

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My NF Study Guide

If you or your child has NF1 and have not visited an NF Clinic Network (NFCN) clinic in the past…

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FDA Grants Priority Review for Mirdametinib for the Treatment of Adults and Children with NF1-PN

Press Release FDA Grants Priority Review to SpringWorks Therapeutics’ New Drug Applicationfor Mirdametinib for the Treatment of Adults and Children…

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Unleash Your Impact: DIY Fundraising Spotlight

NF Midwest extends heartfelt gratitude to the Frano Family for their remarkable generosity and creativity. Inspired by their commitment, the…

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Stay Informed with NF Midwest See All NF Posts

The Champion of the Fall Announced

NF Midwest recently concluded its 2024 Champions of the Fall fundraising campaign, a dedicated effort to support individuals affected by…

2025 Walk4NF Events

Neurofibromatosis Midwest (NF Midwest) is excited to announce the 2025 Walk4NF events, dedicated to raising awareness and funds for individuals…

Tumor Early Detection (TED) Study

The NF1-TED study is still recruiting and is looking for 1000 participants, age 18 and older. This study looks to…

NF Midwest December Update

Check out NF Midwest’s December update. If you are connected with us, you should have received this in an email!…

My NF Study Guide

If you or your child has NF1 and have not visited an NF Clinic Network (NFCN) clinic in the past…

Champions of the Fall

Welcome to Champions of the Fall! This is an exciting new fundraising and awareness campaign from NF Midwest, running from October…

Windfall Wednesday

Win Up To $500 in Visa Gift Cards! Get ready for Black Friday, Cyber Monday, Giving Tuesday—and the whole season…

Ben’s Trip to Camp

Each year NF Midwest provides the opportunity for families to apply for scholarships for their son or daughter to attend…

FDA Grants Priority Review for Mirdametinib for the Treatment of Adults and Children with NF1-PN

Press Release FDA Grants Priority Review to SpringWorks Therapeutics’ New Drug Applicationfor Mirdametinib for the Treatment of Adults and Children…

Video Series: Managing NF1 Plexiform Tumors

NeurologyLive recently posted a video series Managing Neurofibromatosis Type 1 Related Plexiform Neurofibroma in Patients of Different Ages. The series…

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