For more information on Neurofibromatosis and to join
message boards, please, go to our national site at nfinc.org!
message boards, please, go to our national site at nfinc.org!
| Join the NF Cause on Facebook! |
CARE or CURE? WHAT WOULD YOU CHOOSE?
Click here to choose!
It’s difficult, especially in these economic times, to keep up BOTH the promise of
research and the comfort of good care, but these are two initiatives that we are
committed to and hope to never waiver from. Research promises to benefit those
with NF and a 100 million Americans with cancer and learning disabilities, but a
cure and new treatments take a long time to develop. In the meantime, we have
NF patients receiving inadequate care through health care providers that do not
have enough knowledge of the various complications of NF or the new data that
research provides. NF coordinated clinics help to further research by supporting
clinical trials, but mainly we need these centers to give the proper care to patients
with a very complicated disorder.
We hope never to have to choose between CARE or a CURE. If we did, what
should we choose? What would you choose? Please help us continue the mission
and at least choose one. Donate whatever you can spare to make a difference.
Click here to choose!
It’s difficult, especially in these economic times, to keep up BOTH the promise of
research and the comfort of good care, but these are two initiatives that we are
committed to and hope to never waiver from. Research promises to benefit those
with NF and a 100 million Americans with cancer and learning disabilities, but a
cure and new treatments take a long time to develop. In the meantime, we have
NF patients receiving inadequate care through health care providers that do not
have enough knowledge of the various complications of NF or the new data that
research provides. NF coordinated clinics help to further research by supporting
clinical trials, but mainly we need these centers to give the proper care to patients
with a very complicated disorder.
We hope never to have to choose between CARE or a CURE. If we did, what
should we choose? What would you choose? Please help us continue the mission
and at least choose one. Donate whatever you can spare to make a difference.
| Sign-up for Great Steps 2010 Walk! Naperville, IL - Saturday, June 5 Madison, WI - Saturday, June 12 Effingham, IL - Saturday, June 19 And Virtually everywhere! |
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Winter/Spring Newsletter
Our Winter/Spring 2010 Newsletter can be viewed now in color and with
interactive links! CLICK HERE
Write Your Representatives NOW
We need you to immediately write your representative in the House only and
request that they show their support of NF research by signing on to two letters
that are being circulated by their colleague Congressman Luis Gutierrez. One of
these letters is requesting $20 million for NF research through the Department of
Defense's Congressionally Directed Medical Research Program (CDRMP) and the
other for specific language encouraging research through the National Institute of
Health.
Please feel free to use this sample letter in PDF or WORD format. Go to
house.gov/writerep where you can fill out a form and copy and paste your letter
or find your representatives fax number and fax it to them. Be sure to include
your name and address. Please, email us and let us know what representative
you contacted.
Great Steps News
For updates on our Great Steps Walks please click here.
Our Winter/Spring 2010 Newsletter can be viewed now in color and with
interactive links! CLICK HERE
Write Your Representatives NOW
We need you to immediately write your representative in the House only and
request that they show their support of NF research by signing on to two letters
that are being circulated by their colleague Congressman Luis Gutierrez. One of
these letters is requesting $20 million for NF research through the Department of
Defense's Congressionally Directed Medical Research Program (CDRMP) and the
other for specific language encouraging research through the National Institute of
Health.
Please feel free to use this sample letter in PDF or WORD format. Go to
house.gov/writerep where you can fill out a form and copy and paste your letter
or find your representatives fax number and fax it to them. Be sure to include
your name and address. Please, email us and let us know what representative
you contacted.
Great Steps News
For updates on our Great Steps Walks please click here.