Can’t make it to one of our Great Steps for NF Walks? Create your own Fantasy Walk!
The idea is to raise NF awareness and raise funds for the cause in the same ways as a team for a
regular walk. You may hold events and/or simply send out requests for donations. But the journey
or walk is yours to create and during your Fantasy Walk you keep your contacts entertained,
informed and even guessing as to where you are actually going. This may include who you are
meeting and what you are doing.
Here’s a sample letter that may help you understand the idea:
Dear Friends,
As some of you may know, I have a personal interest in supporting Neurofibromatosis Midwest.
Neurofibromatosis (NF) is a genetic disorder that can cause tumors to grow anywhere in the body at
any time. It also can cause a host of other difficulties. You may learn more about it at nfmidwest.org.
My friend’s 6 year old daughter, Ella, has this chronic, progressive disorder. Currently, she has an
optical tumor and has lost sight in one eye and has learning disabilities which are very common in
NF. Already having endured many rounds of chemo in her young life, she still has a life of
uncertainly in front of her.
To help raise money and awareness for the NF cause I am creating my own Fantasy Walk. I ask you
to join me on my crazy journey by donating to this worthy cause in my name and in honor of Ella.
I’ve chosen to start my walk in Arcola, IL. Since it’s near where Ella lives and because not only is it
the birthplace of the creator of Raggedy Ann and Andy (does everyone know who they are
anymore?), but it is also the home of the “One and Only Hippie Memorial”. Check it out. Hard to
resist since I am an old hippie named Andy.
So here I am sitting in my mind in Arcola, IL. I’d really like to start on my journey. You can start me
on me way by sponsoring my next leg and donating at firstgiving.com/andys_page_for_ella.
Your Friend,
Andy
Simply create your page at firstgiving.com/nf under the Fantasy Walk event. You can then update
people via email. By encouraging them to pass your emails on or including tidbits about NF you will
not only be raising funds, but also raising awareness. You can make your Fantasy Walk sweet, crazy,
fun or all of the above.
Call the office at 630.945.3562 and we can help you get started!
Starts when you're ready! Ends Sept 30, 2012
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