About NF, Inc. Midwest
Neurofibromatosis, Inc., Midwest began in 1982 around a kitchen table by families affected by
the genetic disorder known as Neurofibromatosis (NF). Looking for support for themselves and
others with NF, for strength in knowledge and for hope in the promise of research they began
the process of forming one of the first NF advocacy organizations in the country. In 1988 this
grassroots organization was incorporated as a non profit 501(c)(3) called Illinois
Neurofibromatosis, Inc. In recent years the name Neurofibromatosis, Inc., Midwest was adopted
to better describe the area we serve. We are affiliated with the national organization
Neurofibromatosis, Inc.
Today NF, Inc., Midwest continues it's mission to support those affected by Neurofibromatosis,
to create awareness and to find a treatment and the cure for Neurofibromatosis by promoting
scientific research.
We offer many avenues of support and education for NF affected families and individuals. This
includes phone support for such things as clinic information or for an understanding ear. We
also hold various events for NF affected individuals or their loved ones to meet and share
experiences and to learn more about NF and NF research. This includes our annual symposium
held every October, an "Ask the Doctors" opportunity in April, Great Steps Walks in the summer
and more. We also have a Parent's Action Committee, a NF Action Group that addresses adult
issues and an NF-2 Action Group.
To promote public education and awareness NF, Inc. Midwest displays at various medical related
conferences and at whatever opportunities open to us.
To improve treatments and promote research we provide direct research grants and support NF
clinics. We are also members of the advocacy group, The National NF Coalition. In partnership
with the Coalition, we work with congressional representatives on both a local and national level
to encourage continued and increased federal funding of NF research.
NF, Inc., Midwest raises 70% of our funds at events, we receive no direct government support.
We rely on corporations, foundations and individuals.
the genetic disorder known as Neurofibromatosis (NF). Looking for support for themselves and
others with NF, for strength in knowledge and for hope in the promise of research they began
the process of forming one of the first NF advocacy organizations in the country. In 1988 this
grassroots organization was incorporated as a non profit 501(c)(3) called Illinois
Neurofibromatosis, Inc. In recent years the name Neurofibromatosis, Inc., Midwest was adopted
to better describe the area we serve. We are affiliated with the national organization
Neurofibromatosis, Inc.
Today NF, Inc., Midwest continues it's mission to support those affected by Neurofibromatosis,
to create awareness and to find a treatment and the cure for Neurofibromatosis by promoting
scientific research.
We offer many avenues of support and education for NF affected families and individuals. This
includes phone support for such things as clinic information or for an understanding ear. We
also hold various events for NF affected individuals or their loved ones to meet and share
experiences and to learn more about NF and NF research. This includes our annual symposium
held every October, an "Ask the Doctors" opportunity in April, Great Steps Walks in the summer
and more. We also have a Parent's Action Committee, a NF Action Group that addresses adult
issues and an NF-2 Action Group.
To promote public education and awareness NF, Inc. Midwest displays at various medical related
conferences and at whatever opportunities open to us.
To improve treatments and promote research we provide direct research grants and support NF
clinics. We are also members of the advocacy group, The National NF Coalition. In partnership
with the Coalition, we work with congressional representatives on both a local and national level
to encourage continued and increased federal funding of NF research.
NF, Inc., Midwest raises 70% of our funds at events, we receive no direct government support.
We rely on corporations, foundations and individuals.
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Neurofibromatosis Inc. Midwest
| Serving the areas of Illinois, Wisconsin, Indiana, Iowa, Kentucky, Tennessee and part of Missouri. |
Dedicated to Support, Education and Hope!
