For more information on Neurofibromatosis and to join
message boards, please, go to our national site at nfinc.org!
message boards, please, go to our national site at nfinc.org!
CARE or CURE? WHAT WOULD YOU CHOOSE?
Click here to choose!
It’s difficult, especially in these economic times, to keep up BOTH the promise of
research and the comfort of good care, but these are two initiatives that we are
committed to and hope to never waiver from. Research promises to benefit those
with NF and a 100 million Americans with cancer and learning disabilities, but a cure
and new treatments take a long time to develop. In the meantime, we have NF
patients receiving inadequate care through health care providers that do not have
enough knowledge of the various complications of NF or the new data that research
provides. NF coordinated clinics help to further research by supporting clinical trials,
but mainly we need these centers to give the proper care to patients with a very
complicated disorder.
We hope never to have to choose between CARE or a CURE. If we did, what should
we choose? What would you choose? Please help us continue the mission and at
least choose one. Donate whatever you can spare to make a difference.
Click here to choose!
It’s difficult, especially in these economic times, to keep up BOTH the promise of
research and the comfort of good care, but these are two initiatives that we are
committed to and hope to never waiver from. Research promises to benefit those
with NF and a 100 million Americans with cancer and learning disabilities, but a cure
and new treatments take a long time to develop. In the meantime, we have NF
patients receiving inadequate care through health care providers that do not have
enough knowledge of the various complications of NF or the new data that research
provides. NF coordinated clinics help to further research by supporting clinical trials,
but mainly we need these centers to give the proper care to patients with a very
complicated disorder.
We hope never to have to choose between CARE or a CURE. If we did, what should
we choose? What would you choose? Please help us continue the mission and at
least choose one. Donate whatever you can spare to make a difference.
| It's not too late to participate in Great Steps! Our Virtually Everywhere walk runs until September 30th! Simply start a page at firstgiving.com/NF under the virtual walk and/or sign-up here for a team number and have donations sent in to us. |
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Winter/Spring Newsletter
Our Winter/Spring 2010 Newsletter can be viewed now in color and with
interactive links! CLICK HERE
Great Steps News
For updates on our Great Steps Walks please click here.
Our Winter/Spring 2010 Newsletter can be viewed now in color and with
interactive links! CLICK HERE
Great Steps News
For updates on our Great Steps Walks please click here.
It's time again...
Grab your co-workers, friends, family and neighbors and sign-up for one of our
August golf benefits for NF.
Take a Swing at NF
Friday, August 13th.
10:00 am Shotgun Start
http://www.golfinvite.com/nfmidwest
Chip in Fore NF
Wednesday, August 25th
10:00 am Shotgun Start
http://www.golfinvite.com/chipinforenf
Grab your co-workers, friends, family and neighbors and sign-up for one of our
August golf benefits for NF.
Take a Swing at NF
Friday, August 13th.
10:00 am Shotgun Start
http://www.golfinvite.com/nfmidwest
Chip in Fore NF
Wednesday, August 25th
10:00 am Shotgun Start
http://www.golfinvite.com/chipinforenf